A major bottle neck in genetic testing is the cost of such tests, which is sometimes unaffordable when not reimbursed by insurance companies.
Several decades of intensive research on the genetic causes of human genetic diseases have resulted in a large list of tests that can be offered to diagnose genetic diseases. In many countries laboratories have been established that offer genetic tests to patients and their families.
Unfortunately, there are huge differences with respect to accessibility, price and quality of the genetic testing in the various countries. The spectrum of genetic diseases that can be tested varies from several hundreds in countries with a well-developed service system to only a few in most countries of the world. Moreover, the high prices of many genetic tests makes these unaffordable to many people when not reimbursed by insurance companies.
The GENDIA foundation was founded by GENDIA to support genetic testing of those that can not afford it.
The foundation is a non-profit organisation that raises funds to pay for genetic tests in selected cases. The GENDIA foundation also offers general information on genetics, genetic diseases and genetic tests.